Yay for Taylor!

Hopefully, Taylor will be joining the PCC Orchestra this year. We are also hoping she can take violin private instruction and ballet. They are limiting the number of high school students they allow in, so we will see...

 

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Biking in Balboa!!

Another milesone victory for me!! I spent the afternoon bike riding around lovely Balboa Island today!

Ron and I had started biking together before I got sick and had a goal of wanting to ride our bikes from Pasadena to Huntington Beach. We were practicing by riding to Sierra Madre and back and I got up to 20 miles along the beach one day when I had brought my bike to Bolsa Chica Beach.

But, today, we put our bikes in the van and drove down to Balboa, spent a couple hours reading on the beach and then took our bikes across the ferry to the island and rode all through the neighborhoods.

This is the first time I've been on a bike since getting sick- and it was so wonderful to be able to ride! The terrain by the beach is pretty flat so it wasnt difficult at all!

Hopefully, we can keep this up and work ourselves back into our goal of riding TO the beach someday!

I am enjoying the strength and health I've been experiencing. With the unpredictability of Wegners, I want to take advantage of it and do all I can. I just dont know if I have any flare ups in my future so I want to "make hay while the sun shines" and live fully present each day!

(Side note: this is the first picture of me with my real hair. My hair finally stopped falling out, I cut it really short and now its starting to grow. I have "chemo hair" - which typically grows back grey and curly. It's really not long enough to be curly...it's just fuzzy. :)

 

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No Hugs for Me!!

Well, I made it to my 50th year before sustaining any broken bones...

I am celebrating the first week of being 50 with a fractured rib! I actually broke it Monday- on my birthday! Apparently I am fragile and hugging me too tightly can break me!! We think it's pretty funny, only it hurts too badly to laugh!

I talked with my doctor, and she didn't recommend driving all the way down to LA, waiting hours to get x-rayed, and subject myself to more radiation, only to be told that they don't do anything for broken ribs other than give pain killers while you wait a couple weeks for it to heal. Thankfully, she diagnosed me over the phone and called in a prescription.

 

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